FSHD Care Connector

On this map, you can search for healthcare providers near you. The doctors listed here, to the best of our knowledge, have come across FSHD before. We can’t recommend one doctor over another, and we can’t measure exactly how knowledgeable they are. We provide this information to help give you a head start in your search to find the right members of your healthcare team.

This information is pulled from multiple sources, but things change every day: People move, retire, or enter the field. We know that this map is incomplete, and we are working on a few different ways to improve it. One of the best sources of information is YOU! If you notice your doctor isn’t listed, or you have a correction to submit, please use the “Suggest Clinician” feature! The more we use this map, the better it will be.

Disclaimer:
  • The information listed here does not indicate an endorsement by the FSHD Society. The information has been compiled from public data, user input, and other sources, and is thought to be reliable but is not guaranteed to be accurate. This information is provided for individual use by FSHD patients and their families and is not permitted to be used by commercial entities.

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