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Fox 25 Boston recently shared the Pappas family’s journey with FSHD and youngest member, Lexi Pappas’ touching short documentary. Lexi Pappas of Natick, MA was diagnosed with the disease in […]
Readers of FSH Watch may remember Katie Ruekert’s personal story about how she struggled to come to terms with her diagnosis of FSH muscular dystrophy, and how her journey eventually […]
Wednesday August 30, 2017 9:00 pm EST/8:00 pm CST Tune in live or listen to the post-show recorded podcast HERE. We’re excited to welcome Charis L. Himeda, PhD, Research Assistant Professor […]
The FSH Society Festive Evening Concert Committee will miss seeing you in person this year. Why we do what we do. FSHD can rob you of your ability to smile. Weaken […]
The FSH Society has awarded grants totaling $616,467 to seven research projects submitted for the February 2017 grant cycle. This brings total research funding by the Society for 2017 to […]
