Our look is new. Our purpose is the same. Learn more about our brand evolution.
Last month, FSH Society Ambassadors Carden and Spencer Wyckoff hiked through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. You can now watch […]
On November 11, the FSH Society honored four distinguished researchers and community members at its inaugural CureFSHD National Gala in Boston, Mass. The event, hosted by WBUR’s Morning Edition Host […]
The evening of the CureFSHD Gala on November 11, 2016, in Boston, Massachusetts, was one of those magical moments when we were overcome with gratitude for the generosity, courage, and […]
The recent national election, bringing in a new Administration, raises questions and concerns about the future of laws and programs of interest to researchers, patients and caregivers dealing with FSHD. […]
Please note that our office will be closed on the following dates: Thursday, November 24, 2016 Friday, November 25, 2016 Friday, December 2, 2016 Monday, December 26, 2016 Monday, January […]
