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by Jean Devenport, Melbourne Beach, Florida Like many of you living with muscular dystrophy, I long knew something was wrong, but I was not sure what it was. Most of […]
What’s so great about the MOVE study? A lot, if you are research geeks like us or care about getting treatments to patients sooner. MOVE is what’s called an “observational” […]
by Kulangara Sivadas, Foothill Ranch, California Editor’s note: This story is one person’s anecdotal experience. He has asked Western-trained physicians to comment on it. Their remarks are added at the […]
Alec DeSimone, PhD, currently a postdoctoral researcher at Yale School of Medicine, was the winner of the Best Poster Award at the 2021 International Research Congress, held virtually on June […]
The 2021 FSHD Society Young Investigator Award at the International Research Congress was awarded to Giorgio Tasca, MD PhD, a neurologist at the Fondazione Policlinico Universitario in Rome, Italy. Dr. […]
