Our look is new. Our purpose is the same. Learn more about our brand evolution.
Because if not us, then who? by Deborah Schwartz, New York City I was clinically diagnosed with FSHD two years before the FSH Society came into being. Mine is a spontaneous […]
by Beth Johnston and Leigh Reynolds, FSH Society Our first nationally branded event, the Walk & Roll to Cure FSHD, will take place in September and October 2018. This new, signature […]
A review of published studies to improve our understanding by Amanda Hill, Highlands Ranch, Colorado As many as 20 percent of patients with FSHD have an “infantile” or “early-onset” form, which […]
From the department of silver linings by Jeff Gibler, Humble, Texas When I was a kid we would come to the United States during the summer to visit my paternal grandparents […]
Click Here to read all the recent research and community updates! Highlights of this issue include: Reports from the International Research Congress & the Patient Connect Conference Profiles of our […]
