Clinical Trial Education

Your clinical trial education hub

Thinking about joining a clinical trial? These pages contain all you need to know to be informed and prepared every step of the way. You can also get a quick start now with our Practical Guide to Clinical Trials.

Clinical trials 101

Start here to learn what clinical trials are, how they work, and who’s involved.

Are clinical trials right for me?

This page will help you think through the risks, benefits, and what to expect before deciding.

How to get started with a clinical trial

Learn how to find a clinical trial, see if you qualify, and take the first steps to get involved.

The screening process and informed consent

This page explains what to expect during the screening process and what to do if you don’t get into the trial.

What to expect during a clinical trial

Wondering what it’s like to take part in a clinical trial? Learn what to expect and how to get ready.

What happens after a clinical trial

Learn how you may be able to keep taking the medicine, when results are shared, and how approval works.

Explore FSHD clinical trials and other research studies


Learn about FSHD drug development and how you can help

Explore the FSHD drug development pipeline and learn how treatments are discovered.

There are many ways you can help the drug development process! Here are a few:

  • Join BetterLife FSHD to share data with researchers, learn about new studies, and track your health
  • Join the MOVE or MOVE Peds natural history studies
  • Check for new research opportunities on our website
  • Encourage your family and friends with FSHD to take part in research studies
  • Learn how you can help advocate for research and clinical trials
  • Give or volunteer to support our mission of treatments and a cure