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by Kent Drescher, PhD, Bay Area Chapter Co-Director I’ve had FSHD symptoms for over 50 years. It seems like I’ve spent much of that time waiting. Waiting for treatment. Waiting […]
[…] bio reads: “Rabbi Haviva Ner-David lives with a degenerative genetic form of muscular dystrophy called FSHD, which has been one of her greatest teachers.” Me at 16. I was born […]
Sponsored content from Allard USA. The FSHD Society provides this content for educational purposes and does not endorse any products or services. Always consult a healthcare professional about the use […]
[…] the cultural differences and history of conflict between our two peoples. I was diagnosed with FSHD at age 16, the first in my family that we know of with FSHD […]
[…] the Society. Back then, almost no one was doing research on facioscapulohumeral muscular dystrophy ( FSHD). The human genome had not yet been mapped. The internet was in its infancy. […]
