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[…] almost overnight. After visits to many doctors, he finally met one who said he had FSHD or a similar muscular dystrophy. “Nothing can be done,” the doctor told him, “but […]
[…] enjoy the thrill of the game and the camaraderie it brings. Living with symptoms of FSHD since birth, Archer has navigated a long road to diagnosis and selfacceptance. Now, they’re […]
[…] aids. High-frequency hearing loss, often mild, may occur in more than half of people with FSHD, but estimates vary. Hearing loss can be more profound in the early-onset form. It’s […]
…when I was first diagnosed with FSHD (infantile onset) by Archer Sverdrup, St. Louis, Missouri Progression is unpredictable. Sometimes you may go a year with only minor progression. Sometimes every […]
[…] in a specific set of muscles may provide a clinical benefit to patients, such as FSHD. As an “investigational” agent, ACE‐083 is not approved by any regulatory agency for use […]
