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[…] and core as active as possible.” – Ulrike Uta At this month’s Feeling Fit with FSHD sessions, physiotherapist Ulrike Uta, MSc, MCSP, of the Muscular Dystrophy Support Centre in Coventry, […]
[…] Society. Before taking the course, Spencer and his sister, Carden, described their family’s experience with FSHD. If you missed it, watch a recap of their inspirational story here. Carden created […]
FSH Society funding leads to breakthroughs. High-profile paper on FSHD published in Cell. Cabianca et al., A Long ncRNA Links Copy Number Variation to a Polycomb/Trithorax Epigenetic Switch in FSHD […]
[…] Women on Wellness (WOW) group, a group of women who personally share the challenges of FSHD meets on the first Wednesday of the month (2P PT, 3P MT, 4 CT […]
[…] with FSH muscular dystrophy. Donna told me of her life-long love of dance, and how FSHD had gradually limited her muscle movement, flexibility and range of motion. She shared with me […]
