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[…] adult life, I was focused on my severe scoliosis, but in 2004 I was diagnosed with FSHD by a neurologist who did nerve conduction tests and other assessments. I remember him […]
[…] participating virtually, every step leads to one powerful moment— the Walk & Roll to Cure FSHD. From now until then, we invite you to team up and help drive progress […]
We’re excited to announce the arrival of our new “About FSHD” brochure. Updated with the latest information on genetics, symptoms, diagnosis, patient care and more, this is your essential guide […]
[…] and mindfulness training are not just theoretical, but part of his lived experience. In this FSHD University webinar, Younger takes you through one of his favorite mindfulness practices. He demystifies […]
[…] 2015 FSH Society International Research Consortium workshop The FSH Society’s 2015 Facioscapulohumeral Muscular Dystrophy ( FSHD) International Research Consortium and Planning Meeting will convene in Boston this year, on October […]
