Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
The FSHD Society is a top-rated nonprofit, recognized with Charity Navigator’s highest rating and a Platinum Seal of Transparency from GuideStar. We are leading the charge to find treatments and […]
Our Promise No one should face FSHD alone. The FSHD Society is dedicated to accelerating research toward treatments and a cure while supporting individuals and families every day. This vital […]
Check out our press release “A Look Back: FSHD Research Advances in 2014,” which summarizes some important advances in our understanding of medical as well as fundamental scientific issues. These include […]
Highlights include: Scapulothoratic fusion in FSHD: a surgical wiring technique has been utilized for fixation of the scapula to the adjacent ribs New books for your consideration Pregnancy and birth […]
