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by HILARY A. C. HOOVER, Ocala, Florida I tested positive for the FSHD gene and am currently asymptomatic. Due to my status, I was asked to donate muscle tissue via open […]
[…] charitable foundation that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy ( FSHD), today announced it has received its sixth consecutive Charity Navigator four-star rating. Scoring 68.40 […]
Our recent webinar featured speech language pathologist Kiera Berggren, from the FSHD clinical research center at Virginia Commonwealth University. Berggren has a passion for understanding and treating issues with swallowing […]
[…] our meetings and conferences. You have activated an environment that is nurturing therapeutics development for FSHD. This makes possible: the phase 2b clinical trial of ACE-083; clinical trials for DUX4-repressing […]
[…] hear about your best holiday gift ideas in the comments section! Reusable drinking straws. While FSHD can make it hard for some to sip through a straw, many others rely […]
