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[…] for 3 years, I became aware that I have not yet met another individual with FSHD wearing one. After doing a little research, there seems to be a lack of […]
Shared by ANTHONY MANNUZZA, Woodhaven, New York Living with FSHD has caused great difficulty for me in keeping my balance. I’m sure you’ve heard this many times from others who have […]
[…] Community Award, for an individual or group that has been an outstanding contributor to the FSHD community. Given every two years, the Community Award in 2016 recognized David Housman, chair […]
[…] and families who are having difficulty getting an insurer to pay for genetic testing of FSHD. It is our impression that the payors are denying claims based on incorrect assumptions […]
[…] Hollenback at 949-270-5953 to ask questions and tell us about you. We’ll be joined by FSHD ambassadors Carden Wyckoff and Lexi Pappas, who each have great stories to share. If […]
