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[…] for its Board of Directors. The Society’s mission is to deliver treatments and a cure for FSHD by connecting all the stakeholders and promoting research through thought leadership, networking, and funding. The […]
This September 6, Doug Craig, a retired scientist who has lived with FSHD since his teenage years, will be embarking on a 290-mile journey from New York City’s Columbus Circle […]
[…] designer shoes. Three years ago, I developed a symptom called foot drop caused by my FSHD Type 2. The biggest loss, which came with losing my muscles that support my […]
[…] like to share one of the most valuable tips I’ve had for dealing with “ FSHD belly.” My abdominal core muscles had become like weak balloons, displacing internal organs. It’s […]
[…] are steered by FSH Society volunteers and designed to serve the interests of individuals living with FSHD, their families, and friends. Our goal is to establish community support, networking opportunities, and guidance […]
