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The Walk & Roll to Cure FSHD is the only national event focused solely on funding progress for FSHD. Led entirely by dedicated volunteers, supported by staff, events take place […]
[…] that has transformed the science of the little-known and incurable disease, facioscapulohumeral muscular dystrophy ( FSHD), today announced the introduction of the first-ever care guideline for FSHD by the American […]
We’re excited to share with you the preliminary agenda for our 2018 FSHD Connect conference, where a coalition of patient and families, top researchers and clinicians, and advocates will gather […]
AI-Driven Muscle Analysis to Support MOVE Peds Study, Advancing Trial Readiness for Pediatric FSHD CHARLOTTESVILLE, Va., March 17, 2025 /PRNewswire/ – Springbok Analytics (www.springbokanalytics.com), a leader in AI-powered muscle analysis, today […]
[…] the FSH Society has worked with the drug’s developer, Acceleron Pharma, to better understand how FSHD affects patients through a survey (see story here) as well as to educate patients […]
