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Highlights include: First muscle biopsies arrive at the NIH BBRI Senator Paul Wellstone FSHD Center Charity Navigator rates FSH Society âśâśâśâś! A festive evening of music and song raises over […]
[…] Washington, D.C., continue to yield big gains in research funding Chronic pain in people with FSHD FSH Society launches peer-to-peer team And much more! Read or download the full 2009 […]
[…] Institute host international conference on most prevalent form of muscular dystrophy FSH Society funds infantile FSHD research Breathing and respiration in neuromuscular disease FSH Society Annual Donor Report 2009 And […]
[…] interest to patients and their families From “children” to “strong adults”: a family’s journey with FSHD FSH Society annual donor report 2010 Walk “n” Roll for FSH Muscular Dystrophy And […]
[…] singer, model, and interior designer, Heather embarked on a new career when her diagnosis with FSHD forced her to reassess her future. Childhood memories of a small-town murder mystery reawakened […]
