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[…] all rely on support from generous donors to continue propelling us toward the cure for FSHD – please donate this #GivingTuesday to ensure that a treatment will be in the […]
[…] could with my old, plastic AFOs. This is a key point, because when you have FSHD, it is important to remain as active as possible to keep muscles from deteriorating. […]
[…] married and become a parent. She’ll share her life story and observations about living with FSHD, and, of course, working with her service dog. To learn more about Skylar, read […]
[…] closet for several years. He was happy to have them. When I was diagnosed with FSHD in 1994, I was terrified by the thought that I might have to use […]
[…] alone. Currently there are 12 chapters in development and five Walk & Roll to Cure FSHD events underway. Volunteer leaders from across the country have stepped up to make a […]
