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[…] a cure, as his son Jimmy and his wife Barbara, both now deceased, suffered from FSHD. “I am committed to our goal of having a disease-modifying drug to our families […]
[…] humor, and a wealth of helpful tips for overcoming the impediments and inconveniences imposed by FSHD. A constant refrain of the group has been, “This is so great! We should […]
[…] their products deserve support and recognition by our community. We would love to compile a curated list of best designs for the FSHD community. Post your favorites in the comments section!
[…] field, Mozaffar serves as a principal investigator and co-investigator in clinical trials of novel therapeutic drugs for FSHD, ALS, and other neuromuscular conditions. His research interests include the pathophysiology of neuromuscular disorders, encompassing nerve […]
[…] Facebook and 4 million Twitter followers, so her ability to get the word out about FSHD is huge! We are so grateful to her for supporting us! Read more about […]
