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[…] disease and can support improved muscle function in combination with supplementation and exercise. Using real FSHD patient food records, we will explore the journey to better nutrition for FSHD and […]
[…] exclusive license agreement with pharmaceutical giant Sanofi to develop and commercialize a novel treatment for FSHD. Sanofi is a multinational corporation valued at $36 billion, making it the ninth largest […]
[…] to measure hand grip strength. If you ask a patient or their family what a FSHD treatment would do, they might tell you they dream of functional improvements such as […]
Ally Roets and her son Sam. The FSHD Society is launching a new chapter for families with early-onset FSHD (also called infantile FSHD). Led by Ally Roets, the chapter will […]
In this FSHD University Webinar from April 15, 2021, Angela Lek, PhD, a research scientist at Yale University School of Medicine, speaks about how her husband’s diagnosis with limb-girdle […]
