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[…] a lifetime. However, this type of approach fails to include many of the other costs FSHD patients incur during their journey. These “hidden costs” include all out-of-pocket expenses (e.g. genetic […]
Telemedicine for FSHD is an idea whose time has come! If people with FSHD are rare, doctors who understand FSHD are rarer still. Patients who don’t have the time or […]
 We’re pleased to share with you this video recording from the FSHD Society’s webinar, “ABC’s of Clinical Trials,” given on December 7, 2019. Our webinar speaker is Rabi Tawil […]
Three entrepreneurs who have been affected personally by FSHD announced at this year’s FSHD Champions meeting that they have established a biotech dedicated to developing a treatment for FSHD. The new […]
[…] shown to enlarge and strengthen muscles in a mouse model of facioscapulohumeral muscular dystrophy ( FSHD). The study was published on November 15 in the Journal of Clinical Investigation Insight […]
