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[…] very happy to learn that there was no fat at all. When I saw my FSHD neurologist after the surgery, he said (in his understated way) “this could be shared.” […]
[…] Zealand filmmaker Taika Waititi features Dr. Tristram Ingham, a physician and disability advocate living with FSHD. The film was made in honor of International Day of Persons with Disabilities, observed […]
Our latest publication from FSH Society’s Living with FSHD Series is now available! For details HERE. To read the “FSHD: A Guide for Schools” on-line PDF
[…] publish new paper “RNA Interference Inhibits DUX4-induced Muscle Toxicity In Vivo: Implications for a Targeted FSHD Therapy” in The American Society of Gene & Cell Therapy providing proof-of-principle for RNAi therapy […]
[…] research paper “Correlation analysis of clinical parameters with epigenetic modifications in the DUX4 promoter in FSHD” in Epigenetics that proposes a prognostic marker that can be measured in a relatively […]
