Our look is new. Our purpose is the same. Learn more about our brand evolution.
A few years ago, James Partridge, a long-time FSHD Society member, decided to re-boot his career and pursue his passion for the blues. His home city of Ann Arbor, Michigan, […]
[…] time for our live interview with two people from the Chicagoland area who live with FSHD. Ramsey Shahed is a 21 year old student at DePaul University studying for his master’s […]
[…] be easily recognized within a health information system. Assigning an individual ICD 10 codes for FSHD will: facilitate the surveillance of FSHD; will allow more accurate estimates of the condition’s […]
[…] the FSH Society made its initial grant award in 2016 to help establish the nationwide FSHD Clinical Trial Research Network (CTRN), we expected the network would be able to bring […]
[…] empower families, and to fund groundbreaking research to find treatments and a cure! Celebrate World FSHD Day (June 20th) and discover the incredible power of networking by starting your own […]
