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BY DAVE LUKAS CRYSTAL LAKE, ILLINOIS The inaugural Chicagoland Walk & Roll to Cure FSHD exceeded every expectation and goal I had. What an amazing day filled with family, community, […]
by Ken Kahtava, FSHD Society This blog post was originally published here on the Project Mercury website. On 11 May in Leiden, NL, the Project Mercury global task force members met for […]
[…] summer day in 1963. While King spoke of long-deferred dreams of equality, today in the FSHD community we are faced with our own pivotal moment. Long told that “there’s no […]
The True Cost of FSHD survey is one of the most important research studies we’ve ever done. It’s the first survey of its kind in the U.S., designed to uncover […]
Serving Parents of Children with FSHD The Parents’ Roundtable Chapter is led by parents who know all too well the challenges of parenting a child with FSH Muscular Dystrophy. This […]
