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by Peter Blackburn, South Africa FSHD group Ottobock 5055 + 5065 I have two of the Ottobock 5055 Acro Comfort braces. These are joined at the back with velcro tape […]
[…] L. Huml, Raleigh, North Carolina Meredith Huml As a muscular dystrophy sufferer—I was diagnosed with FSHD at Duke University’s Muscular Dystrophy Association (MDA) Center in 2003—the best advice I could […]
Join FSHD Radio via Facebook Live on Wednesday, March 27th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with Austin-based artist Ben Livingston. Ben drew […]
[…] near you. The doctors listed here, to the best of our knowledge, have come across FSHD before. We can’t recommend one doctor over another, and we can’t measure exactly how […]
Meet Steven Blier, Sarah Geissler, and Chris Stenmon, three remarkable individuals with FSH muscular dystrophy who spoke about their dreams and personal challenges at the 2016 CureFSHD Gala. Interviewed by […]
