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Here are the slides from the Calgary FSHD 360 meeting on March 16, 2024. Welcome! What is a 360? What is the CTRN? Beth Johnston, FSHD Society, and Neil Camarta, […]
[…] crises are prevalent in our community. Help is out there Kylee Helmke A diagnosis of FSHD poses life-long challenges. Individuals live with an undercurrent of anxiety about how their symptoms […]
[…] the weight of responsibility By David Lukas, Village of Lakewood, Illinois I was diagnosed with FSHD in April 2015. In October 2015, I participated a clinical research trial in Rochester, […]
FSHD Society and Critical Path Institute will aggregate data in C-Path’s Rare Diseases Cures Accelerator-Data and Analytics Platform The FSHD Society announced that it has partnered with Critical Path […]
[…] the award-winning non-profit and global leader in the quest to cure Facioscapulohumeral Muscular Dystrophy ( FSHD), announced that an FSH Society-funded research team led by Peter Jones, PhD, at the […]
