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[…] our second annual GivingTuesday Radiothon to raise funds and worldwide awareness of Facioscapulohumeral muscular dystrophy (FSHD). Streamed over Facebook Live, our intrepid host Tim Hollenback will conduct nonstop interviews from […]
by June Kinoshita, FSHD Society As an FSHD patient raises her arm, Jeffrey Statland, MD, provides a resistive force to assess her strength. When doctors diagnose individuals with a progressive […]
Excerpt from Howard Chabner‘s forthcoming FSHD Autobiography: I tried to find life insurance but brokers told me I was uninsurable because of my FSHD. Finally, one broker found a company […]
[…] Facio Therapies announced today that it has selected a second series of potential candidates for FSHD drug development. This series encompasses a family of novel small-molecule compounds that repress DUX4 […]
What the FSHD Society can and must do for the community by June Kinoshita, FSHD Society The FSHD Society has been tightly focused on understanding FSHD and speeding up the […]
