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[…] have had the honor and the privilege of helping individuals with facioscapulohumeral muscular dystrophy ( FSHD) and their families educate the general public, fundraise for research to find a cure […]
Our Voice of the Patient Forum on drug development for FSHD will take place on April 21st. This landmark event is our community’s platform to testify to the FDA on […]
EIM device is noninvasive and painless. FSHD patients are needed for a research study for: The Relationship of Electrical Impedance Myography to Muscle Structure and Function in Facioscapulohumeral Muscular Dystrophy (FSHD). […]
[…] seen me as Mia. I tend to be an open book, but the subject of FSHD never really came up. No one felt that they couldn’t ask me why I […]
The following essay was written by Zabrisa, a 16 year old with FSHD who lives in Arizona. Zabrisa Zelinksi “Are you strong enough? Are you really sure you can do […]
