Our look is new. Our purpose is the same. Learn more about our
brand evolution
.
Events
Blog
BetterLife
Living with FSHD
Understanding FSHD
Diagnosis
Early-onset FSHD
Genetic Testing
Symptoms
FSHD University
Physical Health
Wellness
Glossary of Scientific Terms
Patient Library
Genetic Cause
Managing FSHD
BetterLife FSHD
Finding Care
FSHD Navigator
Newly Diagnosed with FSHD?
Medical Concerns
Additional Resources
Adaptive Equipment
Coordinating Care
Caregiver Self-care
Financial/Legal Resources
Family Planning
Get Involved
Communities
Local Chapters
Online Communities
Gathering Place
Social Media
Parents’ Roundtable Chapter
World FSHD Alliance
Events
Walk & Roll to Cure FSHD
FSHD 360 Regional Conferences
FSHD Connect Conference
World FSHD Day
How to Help
Ways to Give
Fundraising
Donate
Volunteer
Advocacy
Government Advocacy
FDA Advocacy
Voice of the Patient Report
Upper Body Mobility
Payor Advocacy
True Cost of FSHD
Share Your FSHD Story
Research & Clinical Care
Research & Clinical Trials
Drug Development Pipeline
Clinical Trial Research Network
Current Trials and Studies
Clinical Trial Education
Clinical Trials 101
Are Clinical Trials Right for Me?
How to Get Started with a Clinical Trial
Screening and consent
What to expect
After a Trial
Research Updates
For Researchers
International Research Congress
Apply for a Grant
For Clinicians
FSHD Masterclass
Therapeutic Accelerator
Project Mercury
Global Innovation Hub
About Us
About the FSHD Society
History
Our Mission
Our Impact
Research We Have Funded
Our Team
Our Partners
Financials
Media Center
Brand Guidelines
News & Media
Blog
FSHD Research
FSHD Society News
Fundraising & Events
General
Living with FSHD
Health and Medicine
Mental Health
PT and Exercise
Tips and Tricks
Media & PR
Media Library
FSHD Straight Talk Podcast
The FSHD Advocate Magazine
Events
Blog
BetterLife
Donate Today
Search for:
Donate
Today
All Events
This event has passed.
May 7 @ 11:55 pm
Share
Add to calendar
Google Calendar
iCalendar
Outlook 365
Outlook Live
Details
Date:
May 7, 2025
Time:
11:55 pm
Venue
McGreevy’s Sports Bar
911 Boylston Street - Boston
Boston
,
MA
United States
+ Google Map
Share
back to top
