Lighting the Way to a Cure

2021 Philadelphia Walk & Roll to Cure FSHD!

Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA

Please mark your calendars for the Virtual 2021 Philadelphia Walk & Roll! Though our Walk & Roll will be virtual this year, we will gather for a celebratory Chapter meeting on Saturday, Sept. 18th at 10am at the Wissahickon Valley Public Library (650 Skippack Pike, Blue Bell PA 19422). There will also be a Zoom link available for those who cannot... Read More »

Greater Philly Chapter Meeting

Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA

Please mark your calendars for our first Chapter Meeting of 2020. There are a number of items on the agenda that should be of interest to you, including the following. Voice of the Patient meeting on April 21, 2019 in Washington DC The biannual FSHD Connect conference also in Washington DC on June 27, 28... Read More »

Greater Philadelphia Chapter meeting

Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA

Many thanks to everyone who was able to attend our initial Philadelphia chapter meeting in September. The feedback was very positive and provided guidance regarding future meetings: Many of you commented that meeting other people with FSHD and learning their stories was the highlight of the meeting. We had people spanning a wide range of... Read More »