Meet the World FSHD Alliance Leaders

Fabio Figueiredo

Abrafeu - Brazilian Association for Facioscapulohumeral Dystrophy
Eduardo Silveira

Abrafeu - Brazilian Association for Facioscapulohumeral Dystrophy
Sylvie Genet

AFM-Téléthon France FSHD patient group and FSHD Europe
Sylvie Jaricot

AMIS FSH Association
Ria de Haas

Dutch Neuromuscular Disease Association (Spierziekten Nederland)
Kees van der Graaf

Dutch Neuromuscular Disease Association (Spierziekten Nederland) and FSHD Europe
Pierre Laurian

Fondation DUX and AMIS FSH
Neil Camarta

FSHD Canada Foundation
Macarena Díaz Ubilla

FSHD Chile
Baisheng Ning 宁栢晟

FSHD-China Patient Advocacy and Support Organization
Sheila Hawkins

FSHD Europe
Lora Chun

FSHD Finland
Lauri Pirinen

FSHD Finland
Emma Weatherley

FSHD Global Research Foundation
Alexandros Giovas

FSHD Greece
Manav Goel

FSHD India Foundation
Tali Maron

FSHD Israel
Haviva Ner-David

FSHD Israel
Annalisa Alimandi

FSHD Italia APS
Stefania Bertucci

FSHD Italia APS
Tomoyuki Nakata

FSHD Japan
Tereza Viglašová

FSHD Slovakia
George Pollock Jr.

FSHD Society
Hector Ricardo Gerpe

FSHD-Spain
Rajeshri Badiani

FSHD UK
Mitsuru Sasaki-Honda

The Japan Muscular Dystrophy Association, FSHD group
Gerda Brown

Muscular Dystrophy Foundation of South Africa
Hanne Skovgaard

Jensen Muskelsvindfonden
Lene Lebech

Muskelsvindfonden
Marieke Verbij

Spierziekten Nederland
Fabiola Maria Bertinotti

UILDM-FSHD - Unione Italiana Lotta alla Distrofia Muscolare
Micaela Doni

UILDM-FSHD - Unione Italiana Lotta alla Distrofia Muscolare
Maria Giovanna Tortora

UILDM-FSHD - Unione Italiana Lotta alla Distrofia Muscolare