Our look is new. Our purpose is the same. Learn more about our brand evolution.
Daniel Perez, president and CEO of the FSH Society, represented the FSHD community at last week’s meeting of the Muscular Dystrophy Coordinating Committee (MDCC). The day-long meeting was held on […]
Re-posted with permission from Spencer Wyckoff Before the Race Three ordinary people set out toward the Georgia International Horse Park on Saturday March 7, 2015 around 7:00am.  Our bellies were full of […]
Are you eager to meet other patients and learn about the latest research? Several meetings are being planned for next month. Find out if there’s one near you: April 12, 2015 […]
By Kristin Duquette My body constantly changes and at times, I feel like there’s nothing I can do about it. Every time I lose another piece of mobility, my mind […]
Carden Wyckoff, who is featured in the #CureFSHD Campaign, will be participating with her brother Spencer in the Spartan Race and Obstacle Course in the Atlanta area. Carden and her family […]
