Our look is new. Our purpose is the same. Learn more about our brand evolution.
By Russell Caratenuto, FSH Society Ambassador As a child I never second-guessed my ability to stick out my shoulder blades and make what my friends would call “wings”. This difference […]
The publications listed below were supported by the FSH Society in the form of research fellowships and travel grants. We thank our many donors for providing the funding to advance […]
FSH Society Ambassador Carden Wyckoff recently created a series of posts on Avelist regarding misconceptions and living with FSHD. Below is her latest post on living with muscular dystrophy as […]
We are west coast heavy this month. Our meetings are steered by FSH Society volunteers and designed to serve the interests of individuals living with FSHD, their families, and friends. Our goal […]
The Huffington Post hosted a live discussion around the 25th anniversary of the Americans With Disabilities Act. Our very own Kristin Duquette, a decorated athlete and activist, participated in the […]
