Our look is new. Our purpose is the same. Learn more about our brand evolution.
Thank you to Missy Cassidy for submitting the request to the Governor’s office! Next year, let’s go for proclamations in all 50 states!
DONATE TO HELP TEAM FSHD CYCLING’S CROSS ITS FUNDRAISING FINISH LINE!! We are more proud than we can say to have Team FSHD Cycling embark today on the 3,000-mile Race […]
We are proud and honored to announce that our PR/marketing partner SHIFT Communications earned a Publicity Club of New England Bell Ringer Award! A Silver Bell was awarded for […]
Lynnette Rasmussen OTRL provides detailed, hands-on demonstrations of a variety of gentle exercises targeting specific muscles. Developed in collaboration with an FSH muscular dystrophy patient, these exercises demonstrate principles that […]
Check out our brand-new Orange Slice Selfies video to find out how you can join in celebrating World FSHD Day coming up on June 20th! With the help of great […]
