Browsing “2017 - FSHD Society - Page 25”

Global FSHD Registry Workshop

Posted on January 12th, 20171/12/17

International workshop in November reaches consensus on a global FSHD patient registry. If you are an individual with FSHD, or a family member, you may have been asked to join a […]

Filed under: FSHD Research, FSHD Society News

FSHD imaging study is recruiting volunteers

Posted on January 6th, 20171/6/17

The Kennedy Krieger Institute is recruiting volunteers with FSHD for a clinical research study. Volunteers will be asked to undergo muscle strength testing and non-invasive magnetic resonance imaging (MRI) and […]

Filed under: FSHD Research