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by Jim Albert, Eldersburg, MD The FSHD Clinical Trial Research Network (CTRN) is currently recruiting up to 160 FSHD patients across the seven CTRN sites to participate in a study called […]
by KATHY SENECAL, Cromwell, Connecticut I became a yoga practitioner in the early 1990s, and over time I received certification and training in hatha and Svaroopa® yoga, taught classes, and ran […]
by Amanda Hill, Denver, Colorado FSHD clinical researchers recently published what may soon become a standard battery of assessments for use in clinical trials, an exciting and essential milestone for […]
The Spring edition of FSH Watch is here! Read on to catch up on all the happenings so far in 2018: This issue‘s highlights include: -Jim Chin elected Chair of […]
The Massachusetts-based biotech, Acceleron Pharma, issued a press release this morning with some encouraging news for FSH muscular dystrophy patients about its experimental drug, ACE-083 (see related story). Here is […]
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