Our look is new. Our purpose is the same. Learn more about our brand evolution.
We are proud to announce our newest chapter of the FSH Society, in St. Louis, MO. Big thank you to Marsha Sverdrup for stepping up as our chapter director. We […]
Check out this audio from an interview with Sue Aumiller, director of our Columbus Ohio chapter, with Mark Blazor from Columbus’s top local station, 610-WTVN. Mark read the Columbus Dispatch’s […]
We have published a new e-brochure, “Not Alone,” by Kelly Mahon Hessler. Based on interviews with a wide range of FSH muscular dystrophy patients, parents, and partners, this e-brochure assures […]
You can now register for the FSHD Family Day Conference in Kansas City, taking place on November 10. Registration is free but required so that we have accurate numbers of […]
“I just finished participating in this study as their very first volunteer patient, visiting on the 14th and 21st of August 2018. It was very easy and straightforward.” – Bryan […]
