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Our 2018 Ghostly Gala, held on October 21 at Los Angeles’ fabled Cicada Club, raised awareness and funds for FSH muscular dystrophy. This year’s theme was comedy, laughing for a […]
“I have been impressed with the urgency of doing. Knowing is not enough. We must apply. Being willing is not enough. We must do.”―Leonardo da Vinci Throughout 2018, we have made […]
By Daniel Paul Perez & June Kinoshita One of the blue-sky dreams for those of us working toward treatments for FSH muscular dystrophy is regenerative therapy—treatments to generate healthy muscles […]
Skylar Conover is excited about acquiring a service dog and will be talking about the experience as she joins Tim Hollenback on Thursday, November 1, 2018, for a live interview. […]
by Don Nemke, Oro Valley, Arizona My name is Don Nemke and I’m 72 years old. I’ve had symptoms of FSH Muscular Dystrophy starting 60 years ago and was formally diagnosed […]
