We can do more than simply aspire to a treatment in some undefined future. We are confident that, with your continued support, we will have treatments for FSH muscular dystrophy on the market by the year 2025, so that families everywhere can live out their dreams. This is a critical time! The patients and families… Read More »
Cure FSHD? Now is the time!
Peace Joy Gratitude
You’ve made a difference and we are grateful As the year draws to a close, all of us at the FSH Society wish you Happy Holidays and thank you for the sacrifices you have made to support our mission. You have had life-changing impacts, not only through the research and patient education your donations have funded,… Read More »
An urgent call to action
This year-end webinar by FSH Society CEO Mark Stone is a must watch. He lays out our detailed strategy that will get treatments for FSHD to our families by the year 2025. We have a moral imperative to do everything in our power to overcome all obstacles to FDA approval of the therapies that are… Read More »
New England chapter meeting talks
The University of Massachusetts Medical School’s Wellstone Center for FSHD Research is a leading team of scientists dedicated to understanding FSH muscular dystrophy and developing treatments. The center kindly hosted our New England Chapter’s November 4th meeting, which began with a tasty lunch, followed by a series of talks about some of the cutting-edge research… Read More »
A treatment is out there
“Our mom will always be a superhero in our eyes.” Ever since we can remember, our mom has told us that she has “special muscles.” When we were younger, we thought this meant that she was a superhero, and her special muscles were her superpower. As we’ve gotten older, we now know that her special… Read More »