Browsing “December, 2019 - FSHD Society - Page 2”

ABC’s of Clinical Trials for FSHD [VIDEO]

Posted on December 9th, 201912/9/19

 We’re pleased to share with you this video recording from the FSHD Society’s webinar, “ABC’s of Clinical Trials,” given on December 7, 2019. Our webinar speaker is Rabi Tawil […]

Filed under: FSHD Research

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I thought I would never find happiness ever again

Posted on December 8th, 201912/8/19

BY KRISTIN ZWICKAU CHARLESTOWN, MASSACHUSETTS It was October 2017. I thought I would never find happiness ever again following our daughter’s diagnosis of FSHD. She was six at the time, […]

Filed under: Living with FSHD

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The Future is Now for the Voice of the Patient

Posted on December 5th, 201912/5/19

At the end of the day, if there were a drug that stopped FSHD in its tracks, would you want it, even if it did not restore what you have […]

Filed under: FSHD Research

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