Our look is new. Our purpose is the same. Learn more about our brand evolution.
Excerpt from Howard Chabner‘s forthcoming FSHD Autobiography: I tried to find life insurance but brokers told me I was uninsurable because of my FSHD. Finally, one broker found a company […]
Avoiding falls is especially challenging in cold winter climates, where even the most careful walker is no match for a patch of ice. Several of our members swear by strap-on, […]
Here’s a very interesting post on Psychology Today by Jennifer Jo Brout, PsyD, about the need to raise public awareness around specific muscular dystrophies in the age of genomic medicine. […]
By Kathy Senecal, Connecticut chapter director Last week some members of the FSHD Society and I attended the Community Advisors Gathering at the Hospital for Special Care in New Britain, […]
From PRWeb The FSHD Society and Skyland Trail today announce that they are jointly entering an eight-person team in the 2019 Race Across America (RAAM) to raise funds for their respective causes. The two […]
