Browsing “2022 - FSHD Society - Page 5”

A sense of belonging

by Raj Badiani, FSHD UK This year’s FSHD Connect was the first one that I’d ever attended, and for me this started late on the Friday evening. Sadly, I had […]

True Cost of FSHD

Part of our battle plan to ensure patients will have access to treatments by June Kinoshita, FSHD Society The FSHD Society is undertaking a major study of the full socioeconomic […]