Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
The Utah chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
We provide support, share local resources, and keep you informed on the latest research and care. Whether you’re newly diagnosed or have been living with FSHD for years, we’re here to support you, every step of the way.
Join your local chapter and learn how we can support you on your FSHD journey.
Allison is proud to be part of the strong FSHD community in Utah. FSHD became a part of her life in 2013 when her husband, Curtis, was diagnosed at age 29. As a nurse, she immediately started learning about the disease and how it would affect their family. The FSHD Society has been an invaluable resource, and being part of this community has supported her family in many ways.
Allison and Curtis live in Salt Lake City with their four children, where they founded Anson Calder shortly after Curtis’s diagnosis. The business creates high-quality leather goods and helps fund the mission of the FSHD Society, making a positive impact on the community.
Contact Allison directly or visit the Utah Facebook page.
While Allison is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
Contact Beth Johnston, Chief of Volunteer Leadership to learn how you can make an impact and get involved.
