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There is great power in community. When we come together, each bringing our own unique strengths and skills, we inspire each other to go farther and reach higher than we can when we go it alone.
That’s what the FSHD Society is all about!
Led by volunteers and supported by FSHD Society staff, the Chapter Program is our greatest opportunity to fund more research, connect more patients, and advance more progress. There are many ways for you to get involved and put your talents and interests to work for FSHD progress.
We are looking for volunteers ready to give a little or give a lot… whatever works for you! We need people from all walks of life, with varied talents and interests.
Volunteers are the backbone of the FSHD community. Our volunteers ensure that no one faces FSHD alone. Whether you are interested in signing up for a one-time, day-of-event opportunity or you are interested in joining our volunteer leadership, we would love to talk with you! Please submit our volunteer form and a member of our team will follow up with you.