Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
The Nevada chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
We provide support, share local resources, and keep you informed on the latest research and care. Whether you’re newly diagnosed or have been living with FSHD for years, we’re here to support you, every step of the way.
Join your local chapter and learn how we can support you on your FSHD journey.
Leslie, a member of the Nevada Chapter, has experienced signs of FSHD throughout her life, especially with a family history of the condition. For many years, she tried to ignore it, hoping it would go away. In 2020, she faced the reality of her condition and discovered the FSHD Society. The work being done inspired her to get involved.
A native of Las Vegas, Leslie looks forward to connecting with others in the area who are affected by FSHD. She and her husband are proud to raise their family in Las Vegas, where she is a mom to six children and two grandchildren. Leslie is dedicated to building a strong, supportive community for those living with FSHD.
Contact Leslie directly or visit the Nevada Facebook page.
While Leslie is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
Contact Beth Johnston, Chief of Volunteer Leadership to learn how you can make an impact and get involved.
