Research Updates

Explore blog posts, educational webinars, and upcoming events focused on the latest Research Updates.

Recent FSHD Research Blog Posts

Our iGEM team, from left: Drew Endy (mentor), Amanuel Geremew, Michael Liu, Alice Finkelstein, Mafer Velasquez, Ayushi Mohanty, Katherine Xu, Vanessa Chiprez, Phillip Kyriakakis (mentor).

Hope in the laboratory

Posted on April 21st, 20254/21/25

Taking back control of my destiny through research By Heloise Hoffmann, Standford University For the past year, I have been working alongside a team of fellow undergraduates at Stanford University […]

Filed under: FSHD Research

Aiming to access fresh funding for FSHD research

Posted on April 2nd, 20254/2/25

We need YOU – to write to your senators by Anna Gilmore, FSHD Society Last year was an exciting one for our community as we launched our first FSHD Day […]

Filed under: FSHD Research

Avidity Biosciences Completes Enrollment in Biomarker Cohort in Phase 1/2 FORTITUDE™ Trial

Posted on March 31st, 20253/31/25

Letter from Avidity Biosciences to the FSHD community: Dear FSHD Community, Today, we are very pleased to share with you that we have completed enrollment in the biomarker cohort in […]