With Nicol Voermans, MD PhD, and Nathaniël Rasing, MD
19:00 CET | 18:00 UK | 1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00am PT
While FSHD patients wait for new drugs to slow the progression of muscle weakness, Dr. Voermans emphasizes that there are many interventions already that can have a significant positive benefit. She encourages everyone with FSHD to do what they can to be as healthy and “trial fit” as possible. Dr. Voermans is Professor of Muscular Diseases at Radboud University Medical Center in the Netherlands. She dedicates herself to patients with muscle diseases, both in care and in research, with a focus on congenital myopathies and facioscapulohumeral muscular dystrophy (FSHD). In 2023, she has become co-leader of Radboud University’s research program for neuromuscular disorders. She also leads the European clinical trial network for FSHD.
Dr. Voermans will be joined by Nathaniël Rasing, MD, a Research Physician at Radboud University Medical Center. His primary focus is on studying facial weakness, communication, participation, and quality of life in FSHD. Additionally, he is a neurology resident at Canisius Wilhelmina Ziekenhuis.