Brand Launch

Posted on May 1st, 20255/1/25

A New Look.
A Stronger Voice.
The Same Mission.

We’ve refreshed our brand to better reflect who we are, the impact we make together, and the future we’re building with the FSHD community.

Why the Change?

For individuals living with FSHD, every day is a fight to stay strong, independent, and optimistic. You’ve trusted us to work beside you, driving research, connecting families and support, and pushing for answers. As the FSHD Society has grown, so has our role. Today, we’re more than a research funder. We’re a coalition builder, an information hub, a partner to clinicians, and a support system for individuals living with FSHD and caregivers. Our new brand reflects the power of that evolution: bold, optimistic, and driven by purpose. This is more than just a new logo. This is a signal to the world that we are a movement, and that we are united in powering the path forward.

You Helped Shape This

This rebrand was built with the FSHD community in mind. Every conversation, every email, every moment of trust helped guide this transformation. We didn’t just redesign our website. We re-committed to our purpose: to amplify your voice, support your journey, and power the path forward to a world free from the full impact of FSHD.

Brand Launch quote