To crack the code of FSHD, patients are essential. Every breakthrough in FSHD has been made because patients and their family members got involved. We are hopeful that a treatment is within sight; your participation will move us closer to discovery.
FSH Muscular Dystrophy is highly variable, even among affected family members. Each person has their own unique journey with FSHD. The FSHD Society is here to educate and empower individuals to live their best lives, physically and mentally.
There is great power in community. Around the globe, individuals with FSHD are living proof of that. When we come together, each bringing our unique strengths to bear, we inspire each other to reach higher than we can when we go it alone.
Education is our Best Weapon for Change
FSHD University is your center for advanced education about the art and science of living with FSH muscular dystrophy. Our webinars and other contents are designed to empower individuals to live their best lives, physically and mentally. Our departments of Physical Health, Wellness, and Research provide treasure troves of videos, articles, and resource lists, provided by the world's top experts, including many people living with FSHD. FSHD University is a place for you to gain knowledge, make friends, and find hope.
Latest Blog Posts
By popular demand, we are launching our Women on Wellness Zoom support group starting on Wednesday, October 6. This meeting will take place on the first Wednesday of each month at 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT.This is our mutual support and social group for women…
This is a sponsored blog post by UCLA Health as part of its 2021 Los Angeles Walk & Roll Platinum Sponsorship Partnership. If you ask a patient or their family what a FSHD treatment would do, they might tell you…