Educate Yourself
FSHD is highly variable, even among affected family members. Each person possesses a unique combination of genetic and environmental factors that influence his or her body and health in general and FSHD in particular.
To crack the code of FSHD, patients are essential. All the breakthroughs in FSHD have been made because patients and their family members got involved. We are hopeful that a treatment is within sight and your participation will move us closer to discovery.
There is great power in community. When we come together, each bringing our own unique strengths and skills, we inspire each other to go farther and reach higher than we can when we go it alone.
The FSHD Society is a convener and collaborator to find solutions, but we can’t do it alone. We need you to join us. Your participation is vital to creating a world free of the suffering caused by Facioscapulohumeral Muscular Dystrophy (FSHD).
Latest Blog Posts
FSHD Warrior Pose
by Faye Flatt, Ontario, Canada Yoga has always looked effortless to me and I enjoy watching the gentle movements from one pose and smooth transition to another. In my head it looked like something I could do. So a couple years ago I decided to try it. The instructor was a friend and encouraged me….
FSHD Society signs agreement to expand CTRN
From PRWeb The FSHD Society announced today that it has signed a memorandum of understanding to enter into a three-year agreement to enable the expansion of the international facioscapulohumeral muscular dystrophy (FSHD) Clinical Trial Research Network (CTRN). FSHD is a hereditary muscle-damaging…
Upcoming Events
Oct
27
Los Angeles Walk & Roll to Cure FSHD
2019 Los Angeles Walk & Roll to Cure FSHD We hope to see you on Sunday, October 27th, 2019 at Wilson Park in Torrance, CA! If you’d like, please feel free to bring a picnic lunch for after the walk! To learn all about our fantastic event - Register, Donate, or become a Sponsor - please Click...
Find out more »Nov
7
FSHD Connecticut Connections
Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! Join from PC, Mac, Linux, iOS or Android: https://zoom.us/j/442453571 Or iPhone one-tap...
Find out more »Dec
5
FSHD Connecticut Connections
Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! Join from PC, Mac, Linux, iOS or Android: https://zoom.us/j/442453571 Or iPhone one-tap...
Find out more »
The FSHD Society is a convener and collaborator to find solutions, but we can’t do it alone. We need you to join us. Your participation is vital to creating a world free of the suffering caused by Facioscapulohumeral Muscular Dystrophy (FSHD).