Our look is new. Our purpose is the same. Learn more about our brand evolution.
Check out our upcoming FSH Society Radio podcast with Mark Stone, the FSH Society’s new Chief Executive Officer on October 25, 2017 at 9:00 pm EST. Tune in live HERE. […]
Join us for our annual San Francisco Concert and Conference, given in memory of Joyce Hakansson. Don’t miss our FSHD Family Day Conference and Songs in the Key of Steven Blier benefit concert on […]
Board member George Pollock, who is racing across America this June to raise awareness and funds for FSHD, was featured in his high school’s magazine. In the article, George discusses […]
When my mother, Carol, was diagnosed with facioscapulohumeral muscular dystrophy (FSHD) in the late 1950s, she was told she had only five years to live. As appalling as we find […]
World FSHD Day is right around the corner and we know you want to be ready to raise awareness. The Society’s World FSHD Day t-shirts are here in the official […]
