Check out our upcoming FSH Society Radio podcast with Mark Stone, the FSH Society’s new Chief Executive Officer on October 25, 2017 at 9:00 pm EST. Tune in live HERE.
Mark Stone began his tenure as CEO and President of the FSH Society in September. Stone is a leading executive in health care-related non-profit organizations, having served as an executive leader of research-focused patient advocacy groups for the past 13 years, most recently as the CEO of NephCure Kidney International. During his tenure at NephCure, Stone launched the NephCure Accelerating Cures Institute (NACI), a drug discovery initiative anchored by a clinical trial network comprising more than 35 sites, which seeks to expedite potential treatments for nephrotic syndrome.
“I am looking forward to bringing my experience to the FSH Society. The Society’s track record of success in advancing research initiatives in facioscapulohumeral muscular dystrophy (FSHD) is unmatched, and I am excited about working collaboratively with the founder, our involved and dedicated Board, advisory boards, donors, volunteers and staff to accelerate promising treatments to families impacted by this debilitating disease,” said Stone.
Stone is passionate about helping organizations work to accelerate treatments and cures in diseases that are both rare and of a genetic origin. He has successfully engaged patients, families and friends in raising up an “army of activists” while advocating with pharmaceuticals, the National Institutes of Health (NIH), and the FDA to increase funding levels and enlarge the pipeline of potential therapies. Stone is committed to ensuring individuals and families impacted by FSHD will remain the FSH Society’s core focus and priority.
Now you get the chance to get to know Mark, hear about his vision for the Society, share your stories with him, and ask him questions. Tune in live HERE on Wednesday, October 25, 2017 at 9:00 pm EST. To speak with Mark on the air, call (949) 270-5953.